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A Study of the Effectiveness, Safety and the Long-term Outcomes of Participants With Progressive Familial Intrahepatic Cholestasis (PFIC) Who Take Odevixibat (Bylvay) in China

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NCT07588880 · readout in 1,715 d

Sponsored by Ipsen (industry) · IPN.PA — their whole pipeline →.

Phase
Status
Recruiting
Study type
Observational
Enrollment
20estimated
Sites
5
Country
China

Every value on this page is a field the sponsor filed with ClinicalTrials.gov, reproduced. Dates are their own estimates, revised as a study runs, unless the registry marks them actual. sources →

Source: ClinicalTrials.gov, retrieved 2026-08-19

Dates

each axis at the precision it was filed, with the registry's own basis
DateFiledBasisWhat it is
Start2026-04-16actualWhen the study began enrolling
Primary completion2031-04-30estimatedThe date the last participant is measured for the primary outcome — the readout window
Study completion2031-04-30estimatedThe whole study's end, after follow-up
First posted2026-05-15actualWhen this record first appeared on the registry
Results postedWhen the sponsor posted results to the registry
Record updated2026-08-03actualThe sponsor's own last edit to this record — every projection above is as current as this date

What it studies

Condition

  • Progressive Familial Intrahepatic Cholestasis

Primary outcomes

what the primary-completion date above is the date OF
Percentage of participants experiencing adverse events (AEs)
measured From first ICF signature and up to end of data collection (approximately 5 years of data collection), or 30 days after the last dose of odevixibat (in case of treatment discontinuation), whichever comes first.
Percentage of participants experiencing serious adverse events (SAEs)
measured From first ICF signature and up to end of data collection (approximately 5 years of data collection), or 30 days after the last dose of odevixibat (in case of treatment discontinuation), whichever comes first.

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