Study of Longitudinal Observation for Patient With X-linked Hypophosphatemic Rickets/Osteomalacia in Collaboration With Asian Partners
← catalyst calendarNCT03745521 · readout in 865 d
Sponsored by Kyowa Kirin Co., Ltd. (industry) · 4151.T — their whole pipeline →.
Phase
—
Status
Active, not recruiting
Study type
Observational
Enrollment
226actual
Sites
1
Country
Japan
Every value on this page is a field the sponsor filed with ClinicalTrials.gov, reproduced. Dates are their own estimates, revised as a study runs, unless the registry marks them actual. sources →
Source: ClinicalTrials.gov, retrieved 2026-08-19
Dates
each axis at the precision it was filed, with the registry's own basis| Date | Filed | Basis | What it is |
|---|---|---|---|
| Start | 2018-05-01 | actual | When the study began enrolling |
| Primary completion | 2028-12-31 | estimated | The date the last participant is measured for the primary outcome — the readout window |
| Study completion | 2028-12-31 | estimated | The whole study's end, after follow-up |
| First posted | 2018-11-19 | actual | When this record first appeared on the registry |
| Results posted | — | When the sponsor posted results to the registry | |
| Record updated | 2025-09-05 | actual | The sponsor's own last edit to this record — every projection above is as current as this date |
What it studies
Condition
- X-Linked Hypophosphatemia
Intervention
- Other: no intervention
Primary outcomes
what the primary-completion date above is the date OFHeight
measured After enrollment, patients will be observed annually or every 2 years for up to 10 years.
The 6-Minutes Walking Test
measured After enrollment, patients will be observed annually for up to 10 years.
Timed Up and Go Test(TUGT)
measured After enrollment, patients will be observed every 2 years for up to 10 years.
Publications
- PMID 41911946 — linked by the registry
- PMID 40962182 — linked by the registry
- PMID 40074938 — linked by the registry
- PMID 32601114 — linked by the registry
Linked on the registry record. A “linked by the registry” entry is NLM's own automated PubMed match, not a claim by the sponsor that the paper reports this study.
Permalink · 4151.T's whole pipeline · Catalyst calendar · Every registered study · What changed