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RGX-111 Gene Therapy in Patients With MPS I

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NCT03580083 · readout in 322 d

Sponsored by REGENXBIO Inc. (industry) · RGNX — their whole pipeline →.

Phase
Phase 1/2
Status
Suspended
Study type
Interventional
Design
Non randomized · None · Treatment
Enrollment
21estimated
Sites
2
Countries
Brazil, United States

Every value on this page is a field the sponsor filed with ClinicalTrials.gov, reproduced. Dates are their own estimates, revised as a study runs, unless the registry marks them actual. sources →

Source: ClinicalTrials.gov, retrieved 2026-08-19

Why the sponsor stopped it

The FDA placed a clinical hold on RGX-111 investigational gene therapy following an initial single case report of neoplasm (intraventricular CNS tumor) in a participant treated in its phase I/II study four years prior.

As filed on the registry record, in the sponsor's own words.

Dates

each axis at the precision it was filed, with the registry's own basis
DateFiledBasisWhat it is
Start2019-04-03actualWhen the study began enrolling
Primary completion2027-07-07estimatedThe date the last participant is measured for the primary outcome — the readout window
Study completion2029-03-06estimatedThe whole study's end, after follow-up
First posted2018-07-09actualWhen this record first appeared on the registry
Results postedWhen the sponsor posted results to the registry
Record updated2026-03-12actualThe sponsor's own last edit to this record — every projection above is as current as this date

What it studies

Conditions

  • Mucopolysaccharidosis Type I (MPS I)
  • Hurler Syndrome
  • Hurler-Scheie Syndrome

Intervention

  • Genetic: RGX-111

Primary outcome

what the primary-completion date above is the date OF
Safety and Tolerability
measured 24 Weeks

Publications

Linked on the registry record. A “linked by the registry” entry is NLM's own automated PubMed match, not a claim by the sponsor that the paper reports this study.

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